Elijah is doing much better today! We are so thankful! Yesterday he had minor surgery to remove some thick clotting blood from the space between the lung and chest wall. He tolerated it well and the surgeon was very pleased with the outcome. He took a lung biopsi even though he said the lung looked healthy.
Tomorrow we have a meeting with all the doctors involved with Elijah's care. One of the nurses who loves Elijah and has become very attached to him is going to come too. We will talk about what's next for our little guy. We will need wisdom from God to make these decisions. I know He will be our help and our strength in this
meeting.
As for God, his way is perfect: the word of the Lord is tried: He is a buckler to all those that trust in Him. For who is God save the Lord? or who is a rock save our God? It is God that girdeth me with strength, and maketh my way perfect. He maketh my feet like hinds feet and setteth me upon my high places. Psalm 18:30-33
The options for Elijah as it is now is to either pray that he will get better the way he is now or to reverse the surgery (Glenn)that was done and put in a small shunt.If they do this he may get better and may be able to go home. The down side is that there is no long term prognosis, or options to sustain him as he grows with this option.
Pray for wisdom!
Mary and I both have sore throats today. I will stay home from the hospital to rest and not pass on this bug.
Lori
Wednesday, January 31, 2007
Tuesday, January 30, 2007
Hope always
Rejoice and exult in hope;
be steadfast and patient in suffering and tribulation;
be constant in prayer.
Romans 12:12
This would have to be my theme verse for what this blog is set up for. Rejoicing in our hope for our precious Elijah. Rejoicing in hope through the trials and suffering and sharing in our prayers offered to God.
I am just going to jump on in and begin where we are right now. Maybe one of these days I will be able to back track but I don't have the time now. So if you have any questions. Let me know.
I need hope. I have to have hope! I have to see the good even if it is buried by a mound of bad. Because God is with me, because I accept and believe what He says, I know there is hope. I know there is hope and I will dig in that mound to find it if it takes all that is in me to do it.
We came very close to loosing Elijah this weekend. He literally was resesitated (with drugs). I wondered if was God's plan that Elijah would go be with Him.
I have come to a place of surrender to God's plan but that does not take away the pain and the emotional drained feelings. I shed a lot of tears this weekend. I prayed for a miracle. I also prayed for God's will.
Elijah is so fragile right now. Even so, it is amazing how strong he is and how he fights to breath on his own. He wants life. We want him to live. What does God want?
God keeps reminding me He can do miracles. I believe with all my heart He can. I have seen them. I can't forget Elijah's birth. He was born with no difficulties, he breathed and looked at us with those beautiful eyes. That was unexpected to those who did not know the power of God. He had a knot in his umbilical cord that potentially could have cut him off from life before he was born but it didn't. The doctors were amazed. He nursed and grew even though the medical profession said a baby boy with Down syndrome and a heart defect could not do it. We prayed and though God did not answer some prayers imediately, He did in His own timeing.
To me Elijah is a miracle. He is a blessing. God has blessed us by giving us Elijah and yes, all of this tribulation that has followed. We have been blessed. We are blessed.
Lori
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